tag:blogger.com,1999:blog-62110752820678359742011-11-27T18:24:58.737-05:00Find out what it is like to live with Fibromyalgia each day and things that have made it easier for me live with it. Maybe they could help you too.kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.comBlogger301100tag:blogger.com,1999:blog-6211075282067835974.post-34275244720662050952009-04-14T19:37:00.004-04:002009-04-14T19:47:53.017-04:00

I was just curious if anyone has tried the medicines Lyrica or Cymbalta for fibromyalgia symptoms?I have not tried them. I tried an antidepressant years ago. It worked somewhat for about one and half years. Then the side effects were worse than the problems it was supposed to solve, so I quit it and found other ways to cope.Currently I take CoQ 10 and a calcium chew.How are you coping with

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-45822210625126509532009-04-11T17:15:00.000-04:002009-04-11T17:18:46.577-04:00

I woke up in the middle of the night last night and had trouble getting back to sleep. So today, I have been struggling to keep awake. Also my muscles hurt all over. I know it is because of the sleep interruption.One thing that does help me is if I drink pink grapefruit juice. I don't know why this works, but it tends to take the sting out of the muscles so they don't hurt so much. Does this

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-6677316317230768722009-03-19T14:08:00.001-04:002009-03-19T14:14:27.109-04:00

Last night I went to bed late and slept on my left side which I have been having a lot of pain there. Since I was so tired, I forgot not to turn to that side. I woke up a couple of hours later in extreme pain and could not get back to sleep.Finally about 5 a.m. I drifted off to sleep again. While waking at 7 a.m., I realized I was still in pain. I laid in bed trying to find a comfortable

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-42081543136911313062009-02-09T11:44:00.000-05:002009-02-09T11:48:14.542-05:00

I have been having a lot of pain in my neck and shoulders. I had been attributing it to my pillows when I sleep. Now I have found out it was because I was cold. My night gowns had low necks. The other night I was so cold that I pulled on a turtle neck shirt over my night gown, and low and behold, I woke up pain free.Evidently before I had been scrunching up my shoulders when I was cold

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-40160613800195635492009-02-06T21:22:00.000-05:002009-02-06T21:27:10.716-05:00

I have found that if I try to exercise all of my joints with what I call "Range of Motion" that my fibromyalgia problems are less.I try to think of all the different ways I can move each joint and make them do that but no more than 10 times for each direction and joint. If I do more, then I am very sore for several days.If you are interested in how I actually do these exercises, please leave me

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-60023308656281934222009-01-08T07:13:00.000-05:002009-01-08T07:17:00.277-05:00

I have been trying to figure out why some nights I wake up in the middle of the night and can't get back to sleep. I know yesterday I ate a lot of sugar and junk food that I shouldn't have eaten. Is that what caused me to wake up at 3 a.m. this morning.Now I will have a hard time functioning today. I will have to watch this and see if there is any correlation with the sugar.I would so like to

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-41084486131232863982008-12-27T19:39:00.000-05:002008-12-27T19:45:54.371-05:00

I usually can go to sleep quite easily, but there are times when I go to sleep and then wake up 4-5 hours later and can't get back to sleep for 2-3 hours. It makes my next day very hard to get through. Also when it seems to happen, I will do that for several nights in a row.I cannot figure out what is making me wake up, and why I can't go back to sleep quickly.I used to think that it was

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-54493788111844240192008-12-21T19:42:00.000-05:002008-12-21T19:45:51.438-05:00

I've had a long day without resting in between. Tonight I found that I was having trouble walking, and I kept dropping things -- like my hands would just let go and whatever I was holding was now on the floor. Made a real mess when I was trying to fix dinner. Do you drop things too?

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-39802005645004682822008-12-15T07:42:00.000-05:002008-12-15T07:52:09.050-05:00

I had fibromyalgia a long time before I figured out that the pain in my feet was related to fibromyalgia. I just figured my feet hurt because I had been standing a long time. Then I found a fibromyalgia book that explained that the foot pain was a part of the syndrome.My mistake yesterday was to wear my dress shoes to work instead of my usual tennis shoes. By last night, the balls of my feet

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-48081475631953837282008-12-13T18:17:00.000-05:002008-12-13T18:22:28.830-05:00

I was just wondering if there are others suffering from fibromyalgia who have become super sensitive?I find that I can feel my fingernails grow. They actually hurt when they do that. In a day or two it quits. Anyone else out there have this problem?I find I have sensitive hearing also. Loud volume on music, tv, etc. actually causes my ears to hurt.I have at times had my skin become so

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com2tag:blogger.com,1999:blog-6211075282067835974.post-82581651068025973252008-11-27T09:49:00.000-05:002008-11-27T09:53:38.650-05:00

Happy Thanksgiving to all in America!Hope everyone has a good holiday. I spaced out my holiday plans so that I am not stressing my body too much for the holidays.I made a pumpkin custard this morning -- the pumpkin pie filling with out the crust. I also made a relish tray.Then we will cook a small turkey roast, a green bean casserole, stuffing, sweet potatoes. I also have cranberry relish.Most

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-3165887241814243782008-11-25T10:43:00.001-05:002008-11-25T10:55:03.357-05:00

When I first developed fibromyalgia in 1980, no one could figure out what was wrong. It wasn't until 1993 that I finally got a diagnosis as fibromyalgia was rediscovered.In reading the News at Google this week, I am interested that they are now able to track brain abnormalities. Fibromyalgia patients show brain abnormalities from the Journal of Nuclear Medicine.I had read a few days ago about

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-78589853987363023842008-10-27T10:52:00.000-04:002008-10-27T11:04:09.549-04:00

My new diet of dropping back to 500 calories every other day is working out well so far. I have lost 14 lbs. so far. Yea! Only 15 to go. I think it is working because I don't feel deprived because I can eat anything I want on the day in between. I also probably eat healthier on my low day because I have to think about what I am eating, and I also try to be sure to eat my food slowly and

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-25282550867178707552008-09-09T20:29:00.000-04:002008-09-09T20:33:29.672-04:00

With rest and staying off wheat, I am doing better today. I was able to go to a meeting this morning and work in the afternoon. Yea!I have also tried a new way to diet called "The Alternate Day Diet" where you cut back on calories every other day. I have done it for four days now, and so far so good. I will keep you posted.I have lost a little weight also. I need to lose about 25 pounds. It

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-83569973907027562662008-09-08T09:10:00.000-04:002008-09-08T09:17:51.646-04:00

One of the problems with fibromyalgia is that I never know where my limits are. It is like a limbo stick that is constantly being raised and lowered. Something that doesn't bother me one day will cause a flare another day.My latest flare I can trace to eating too much pizza. I had been getting away with eating more wheat. I made the mistake of eating three pieces (1/4 of a large pizza) one

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-36918352473530767032008-04-26T21:25:00.000-04:002008-04-26T21:29:18.096-04:00

I get so frustrated that I never know how much I can do before I flair up my fibromyalgia. I have had to quit so many jobs because I can do them for a while, but then my body starts screaming again.I have a job now that I dearly love, but my body is starting to scream again. How do you handle your fibromyalgia?Sometimes rest helps. Sometimes sleeping good helps. Sometimes I can find

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-2564105193355942542008-02-26T09:43:00.000-05:002008-02-26T09:49:13.677-05:00

This has been a hard winter for me as I just seem to get over one cold, and then I get another one. I guess my immune system is down this year or else it is because I am working outside the home part time this year and am exposed to more viruses.Whenever I have a cold or flu, it makes the fibromyalgia pain worse. I do self-massage on the specific points that hurt. Some days my whole skin hurts,

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-51109782313811250892007-10-25T20:54:00.000-04:002007-10-25T21:00:16.224-04:00

The weather that is warm and then cold etc. is hard on fibromyalgia and makes the muscles hurt. As the season starts to change, my body doesn't know what to do as one day is warm and the next day is cold. My muscles cramp up when it is cold. It is like having a charly horse in all of your muscles. I especially feel it around my shoulders and hips. I try to stay warm by dressing in layers so

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-63950564387638773622007-10-21T22:05:00.000-04:002007-10-21T22:08:13.681-04:00

Today I didn't have time to rest between my various activities as I had to go right from one to another from 8:30 a.m. - 5:00 p.m. My body really hurts when I have not had a chance to lie down at all. If I have time to just lie down for 5 minutes, I can get recharged and then go on. I didn't have that chance today.

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-17435885200345690282007-10-04T21:04:00.000-04:002007-10-04T21:08:46.341-04:00

I called a number in my local newspaper about Fibromyalgia. I got back an article from a local chiropractor saying that Fibromyalgia was really a posture problem. He wanted me to come in for an assessment.I actually had gone to a seminar that this chiropractor held a couple of years ago. I don't know that I really believe it is caused by posture. I do know that when I am sore I stand more

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-28077304853411697712007-07-11T20:29:00.000-04:002007-07-11T20:37:29.350-04:00

I just got back from a vacation where I had access to an indoor swimming pool. I was able to do basic exercises in the water and swim each morning after breakfast. I found that I did really well on this trip because of that.I had done exercises in a local motel pool for a while, and it helped too when I did them. I cannot do aerobic exercises though as they go much too fast and too many

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-14510293397267742712007-06-28T17:27:00.000-04:002007-06-28T17:30:42.639-04:00

I traveled this week to a city about 2 hours away with my granddaughters. I find that if I stop and walk at least once an hour that I do better. We went to a Science Museum and were walking around most of the day.I made sure that I did not plan anything stressful for the next day so that I could rest up plenty when I did get home.I was right as I hurt all over the next day. Resting in bed for

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-24303233046394862232007-05-25T18:52:00.000-04:002007-05-25T18:55:41.992-04:00

I find that bottled water fortified with minerals works great for me when my muscles are aching a lot. I need at least 16 oz. per day to feel good and drinking it twice a day is even better.Not only does it hydrate me, but the magnesium makes the muscles quit aching. Not everyone gets these results, but it is an inexpensive way to see if it works for you.

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-64076471387941991872007-04-02T09:36:00.000-04:002007-04-02T09:42:53.703-04:00

This weekend, I attended a conference which had 2 hour sessions twice a day. I managed the first two hours o.k. I went home and rested in between. Then there was another 2 hour session. That I managed too.The next day, I went for two and one half hours. That was too long! The last half hour, I could feel my muscles contracting. I tried moving around, and it relieved it a little. I would

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-60781997830781978782007-03-30T14:45:00.000-04:002007-03-30T14:52:06.118-04:00

After coming home from being out west visiting family, I came down with a local flu that was going around here in Ohio. Another friend had the same experience a few weeks before me.Unfortunately whenever I come down with a flu, it usually hits me harder. I think this is because of the Fibromyalgia. I was down nearly a week while others were getting over it in 3-4 days. I find that I have to

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-27634764292704335992007-03-15T11:19:00.000-04:002007-03-15T11:22:53.874-04:00

I find that taking the time to lie down and rest is important with Fibromyalgia. If I have had a busy day, if I can lie down for just a few minutes and let my body rest that I will revive and be able to keep going into the evening.If I do not rest, I am aching and hurting. I will then have a hard time even going to sleep at night when I do have the chance.

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-16325281868353929502007-02-20T11:28:00.000-05:002007-02-20T11:41:35.902-05:00

Exercise does indeed help Fibromyalgia, but it has to be done carefully. If you overdo it with too many repetitions, you will end up hurting for days. I have found out that I can usually do somewhere between four to ten repetitions but no more at a time.Exercises that I can do:* Swimming and exercising in the water if I go slow enough. I could not do Aerobic Swimming Exercises. It made me

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-26582337308635917442007-02-18T15:41:00.000-05:002007-02-18T15:47:36.404-05:00

I have found that when I am aware that I have been dreaming when I wake up that I feel good the next day. I was originally diagnosed with fibromyalgia when I did a 24 EEG. The doctor noticed that I was not going into REM sleep where you dream. Then he started touching all the trigger points. I about hit the ceiling! He knew just where to touch to find them.My problem is that when I have a

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-18612809336849530472007-02-09T19:42:00.000-05:002007-02-09T19:31:11.164-05:00

The first thing that helped my fibromyalgia back in 1980 was my chiropractor who suggested biofeedback training. I found out that I could control my breathing and relax my muscles. I still make use of it today. I highly recommend it. I was hooked up to some leads which went into a box. They had me sit in a nice comfy recliner and try to match my breathing to the sound. I found that it also

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0tag:blogger.com,1999:blog-6211075282067835974.post-82965530279635894962007-02-08T13:34:00.000-05:002007-02-08T13:17:06.700-05:00

I developed Fibromyalgia in 1980 but was not diagnosed officially until 1993 when fibromyalgia was rediscovered. Fibromyalgia was originally called Fibrositis around the turn of the nineteenth century but was lost after that.I was in the hospital for five weeks with every imaginable test being run on me. All the tests keep coming back normal although I was still in pain. They finally released

kreative40http://www.blogger.com/profile/11870395858125318149noreply@blogger.com0